" My conditions ", is a weekly sometimes bi-weekly update of my conditions, views and anything I might have learned....
Today is Wednesday 4/8/09; I'm feeling very drained, could be the weather, allergies, etc... hate to think of it as my progression with disease. My pointing finger is becoming curled, hard to straighten out, the pinkie finger drawn farther away, can't move closer to other finger. Muscle and Nerves twitching and pulsating more intense some days. I was told with illnesses, colds, etc... these can escalate the symptoms too. I'm using the chair lift more, very tired climbing stairs. I fell, lost balance a few times over the last couple of weeks to a month. Showering is getting creative, hard to clean body when arms won't lift, fingers won't hold and you can't apply pressure when needed. All simple tasks are becoming labored. Couple of good points, I got an electric tooth brush today, boy does that help! Where I can't hold or coordinated the soap, my wife introduced to me liquid soap, on a face cloth, (touche' for women). Yesterday I met with a representative for ALS/MDA (RI Chapter), she guided me through communication devices...I learned a lot, it also calmed a few fears and uncertainties I had. With now my fingers, hands and arms are getting sore and becoming more difficult to coordinate, the technology, support was impressive and assuring for my future with this disease. I'm signing off now, getting tired. Please come back for further updates and pass it on !
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